Feeling Positive

Hellooooo!

So today I had my appointment with my gastroenterologist, Prof Tim Florin, who I just think is amaze-balls. He pulled his contacts and got me an appointment with the surgical team this Friday! Otherwise I would be waiting a LONG time (the joys of the public health system) Whilst there, my IBD nurse, Heidi, who I also think is amazing (throwing around this term a lot right now) got me an appointment tomorrow with a dietitian.

Basically the last 4-5 days have been exceptionally worse than my usual worse…if that makes sense? What I am trying to say is I have Crohn's that's flaring…so I always feel like crap, but lately I have been CRAP. So I haven't been eating properly because it hurts or sends  me into the bathroom for hours on end, usually in the middle of the night so I am getting no sleep either. The dietitian is going to have a chat with me tomorrow and I will probably get put on these drinks called Fortisip. I have had them before and I didn't mind them to be honest. They are meal replacements so I can just get my on the drinks if I need to and hopefully give my poor belly a rest. The only thing I'm worried about is what if they send me to the loo too! Only time will tell… I shall keep posted about that.

Also on a side note, I haven't cried at all about this operation until today! Heidi (ibd nurse) is just so motherly and caring that I just fricken well up every time I see that woman and have a good old cry. I wasn't bawling my eyes out or anything but I shed a few! Haha.

The last few days I have been investigating the shit out of stoma's and all that jazz and have come across some ABSOLUTELY lovely ladies on twitter. A couple have vlogs (if my mum reads this, that is a video blog :P) so I have seen them talking about living with a stoma, asking peoples questions, and basically just showing everyone that its possible to lead a perfectly normal life after an ileostomy. I am feeling inspired and very positive about it all which is a good thing. I know its not going to be all fun and games and fairies and unicorns and pretty things. Its going to be down right disgusting at times and things probably wont go to plan, but I am a tough nut to crack and it will not get me down.

I can't wait to see the surgeon, I have A LOT of questions to ask… It would be nice to ease my mind a little bit. I'm really hoping to get an idea of when this surgery will be. Unfortunately the MRI department haven't been playing along so nicely (you guys don't get a shout out for being amazing) (they're actually really lovely from previous experience and I take that back)
I have to get an MRI so the surgeons can see what they are dealing with and then can work out the urgency of it all and can schedule me in. The MRI department came back with an appointment time at the end of August. 2 months away!! At the moment I'm struggling to see how I can get through 2 weeks! So my gastro specialist, Tim, is going to have a wee chat with them and see if we can get me in urgently. Its looking like I'm probably not going to have it before the surgical appointment which is a bit dumb, so its unlikely that they can schedule in my surgery.

Why not just have a colonoscopy and get it over a done with straight away you ask? If you have had a colonoscopy you will understand why! I also get really sick from the prep. I am unsure if its psychological or if my stomach just doesnt agree with it. I have to say picoprep, you son of a bitch, are the most foulest tasting shit! Nothing takes the taste away and leaves a gross coating in my mouth, usually making me vomit, instead of what its supposed to do - come out the other end!

I would also like to share another predicament. How much does hospital parking suck! It costs me around $20 everytime Im there, and I will be going there 3 times this week and at least once next week that i know of…sigh. I know of somewhere that I can park thats free and only a 10 minute or so walk away but I have Crohns thats in a flare and walking lately…lets just say stirs things up and makes me need to find a bathroom like NOW. Ahhhhh going to have to bust out the ol credit card.

Well that was  my day, I am going to get up and make myself a hot water  bottle and snuggle up for a night in with the hubby.

Muchos Lovos

Holly

P.S check out @TheStomaBagLady on twitter, along with @ThailaSkye, they are the ones with the vlogs that have really helped. (Mum I wish you were better with technology so you could go onto youtube and watch these girls videos so you would feel less freaked out about this all too!) XOX