Quick recap for those of you who don't know: I felt really awful after my MRI from drinking all the bowel prep and I was having really bad stomach pains. I made myself a wheat bag and fell asleep on it, when I work up exactly where the wheat bag was, were blisters so I thought I had burnt myself. But they kept getting worse and the pain today was unbelievable!
I went to my GP today and she took one look at them and said they were shingles, and a very bad case of them at that. I was a bit surprised because I have never exhibited any signs of chicken pox before - but I must have had them and not known! Shingles is a virus that stays dormant inside you after you have had chicken pox and then when you are really stressed out or have a low immunity they can come out. It's safe to say I am both of those!
I got in touch with my IBD nurse straight away as I am due my next dose of Humira tomorrow and wasn't sure if i should still be having it. She is going to call me back tomorrow so we can talk more about it but said to not have the Humira. Really bummed about that, because I can feel myself getting sicker the longer I go without the Humira. Also if my surgery is booked in for the 1st of August like they thought it might be then these might not be gone by then and they probably will want to delay my surgery.
But how can I get better? I feel like I am stuck in a vicious cycle now and theres no way out. Having Crohn's so bad, needing to have an ileostomy and being on immune suppressors has lead me to break out in Shingles. I need to get healthier to get rid of the shingles for me to get my surgery and start Humira. But I cant because the Humira and surgery is what is going to make me better and more healthy….I also don't want to be on this stupid liquid diet any longer than I have to be.
So I am off work for pretty much the rest of the week and go back Saturday. The GP said if I feel ok to work I can because I am not contagious to anyone that has had chicken pox but to not be around pregnant women just to be on the safe side. But I work with someone who is pregnant so I have to stay away for a little while.
So far this has been a real downer post but I do have some LOVELY news to end it! My friend and workmate Nick stopped by after work with some absolutely beautiful flowers from the work team. If you read this guys - THANK YOU!!! It made me feel so much better, every time I look at them I smile and the card is lovely :)
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| Roses and daisies..some of my favourites! |
AND! AND!!! NICK GOT ME MY VERY OWN OSTOBEAR!!! She will be coming with me for my operation. It is so cute and she is just like me! (well future me) I absolutely love her! I need name suggestions…anyone?
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| She has her own intestine poking out and all! |
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| Flannelette PJs and her own little baggy. Haha! |
So even though I have had a crappy time lately, I have some truly amazing friends and family. That's what matters most.
Holly X
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